Wednesday, June 6, 2012


It was a long day at the clinic but a good one.  Nolan very slowly is still continuing to improve.  His hemoglobin was dropping quickly last week and I was almost certain he was going to need blood this week, but I was wrong.  His counts went up on their own.  Nausea continues to come and go but we finally tried the sea band and Nolan loves it!  He wears it all the time and is eating better and feeling better.  
Dr. Aguilera and I discussed when Nolan would have his next MRI and we have decided to wait until August 1st.(unless Nolan gets worse)  I'm not 100% comfortable with this, but Nolan went 3 weeks without any chemo. We have no way of knowing how much the cancer grew in that time. Since this chemo can be a slow process we need to give it some time to work.  We don't want to jump to conclusions because we don't have a lot of options to fall back on.

This month is going to be very busy so there may be very few updates.  Just know I will post if something changes.  We are going on the Lighthouse beach retreat June 18th-23rd.   The kids have been so excited about the Lighthouse trip, they just can't wait.  We had such a good time last year and we can't wait to see what is instore for this year :-)  After we get back from the beach retreat Nolan will go to Camp Sunshine.  I'm so nervous!  I do know that Nolan is looking forward to this and he will be well taken care of. They have a wonderful staff of doctors, nurses, child life specialist and volunteers. He's going to have a blast!


I had to post this picture.  It all started with a ripped bag of gummy worms.  I didn't have anything to put all the gummy worms in so grabbed a puke bag and poured the worms in. It was clean, I promise ;-) Now he likes to do it often to see if anyone notices. He got a lot of stares and laughs! haha! Nolan loves anything that gets attention and seems gross!

Thank you for continuing to support and pray for Nolan
Brittany

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