Thursday, October 31, 2013

MRI results

Everything went smoothly with Nolan's MRI yesterday and I got a call from the doctor on the way home that everything looks good!!!  There is no shrinkage and there is no growth.  Everything looks exactly the same as the last MRI.  So that makes 10 months stable for Nolan!! WOOOHOOOO!!!
We are so happy and so relieved :-)  

We do have a prayer request...
Nolan cannot stop itching.  It's causing him to dig deep holes in his chest and around his neck.  We have tried numerous medications, ointments, creams, etc...  Nothing is working and it's not only annoying for Nolan but painful.  The doctor has put in a referral to a dermatologist at Emory and we hope they will have some idea's to help.  In the meantime we continue to put bandaids all over his neck to keep him from scratching :-(

Thank you for all the prayers and support!!

Brittany


Tuesday, October 29, 2013

MRI tomorrow

Nolan has an MRI of the brain and spine tomorrow. Please say a prayer for good stable results!!

I will update as soon as I know something...

Thank you!

Brittany

Thursday, October 10, 2013



I am so sorry that it has taken me this long to update...
I think I needed the break and we've been so busy I haven't had much time to sit down at the computer.
We are coming up on the next MRI (October 30th) and need lots of prayers for this one.  After discussing the results with Dr. Aguilera in September it sounds a little scary.  His brain scan was stable, his spine is questionable.
The tumor in the spine was slightly larger and looked different.  It's either radiation changes or tumor growth. Either one is not good for this area of the spine.  We are choosing not to dwell on bad news and are just enjoying each and every day and making the most of every moment.  Nolan is doing AWESOME and that's what counts most of all right now.  All Nolan's blood counts have been wonderful!! He hasn't needed any transfusions in 10 months!! The only issue we have had lately is the elevated protein in his urine.  His kidney's are crying, we have had enough avastin!! He is getting more time between each avastin infusion and this seems to have helped.

Nolan is still loving karate, going to school, riding his bike and trying to make every event he's invited to...lol!!

Thank you for continuing to pray for him!!


P.S.  I have a big favor to ask everyone...
If you have 1 minute every day can you take the time to vote for Duncan Dobie?
Nolan LOVES Camp Sunshine and if Duncan Dobie wins Camp Sunshine will be awarded $100,000!!  Please share this info with everyone you know :-)
Thank you, thank you!! :-)
http://www.nascar.com/award