Thursday, November 22, 2012

The kids with their Thanksgiving feast they did in the back yard.
Just wanted to wish everyone a Happy Thanksgiving and thank everyone for all your prayers and support throughout the past three years!! It means so much to us to have wonderful family and friends!

Nolan is doing AWESOME!!! He had his blood checked Tuesday and his platelets dropped but his ANC came back up.  Thankfully everything was in a good range to start his 5th cycle of chemo.  Nolan's next clinic appointment will be on November 28th to have his chemo infusion.  Please continue to pray for stable blood counts and for his MRI on December 3rd.

In everything give thanks; for this is the will of God in Christ Jesus for you
1 Thessalonians 5:18

Oh, give thanks to the Lord, for he is good! For his mercy endures forever.
1 Chronicles 16:34

Wednesday, November 21, 2012

Wednesday, November 14, 2012


Well, it seems we are going through a rough and weird spell with blood counts...
Nolan had clinic today and his platelets have come up to a beautiful 222,000 but his ANC dropped.
Fortunately he was able to get his infusion of avastin but all oral chemo is on hold until his ANC comes up :-(  This is whats weird, week one all counts are low.  Week 2, ANC and hemoglobin look good but platelets have dropped.  Week 3 Platelets have come up but ANC has dropped?? The doctor can't explain and all she could say was Nolan can't tolerate any increases in his chemo.  He will remain at the steady 25mg everyday as soon as his blood recovers.   Of course with all his blood counts being up and down have caused the very little hair he had to fall out.  He really hasn't said much but I'm trying not to to make a big deal about it...

We need some good news!!! lol
He will have his blood checked again next Wednesday, if everything looks good he can start his cytoxan (chemo).  Thalidomide will be on hold until we decide what to do with that.

Along with prayers for blood counts, please be in prayer for his MRI coming up on December 3rd.  I'm nervous of course! I think they will be doing a bone marrow biopsy while he's sedated, not sure if this is 100% planned yet?  Dr. Aguilera is hoping getting a biopsy of his bone marrow will answer a lot of questionable stuff they have had with Nolan's blood work.

Thank you for your support and prayers!!

Wednesday, November 7, 2012

 I'm so sorry! I forgot to post how clinic went yesterday! lol
Really there isn't much to say....
Nolan's ANC and Hemoglobin are recovering and coming back up but now his platelets have dropped really low.  So, that means no chemo right now and they took him off of his celebrex (part of his chemo protocol).  He has an appointment to go back in on the 14th to have his blood re-checked.  We are hopeful BUT he had a bad nose bleed tonight.  If he has anymore we may need to get his blood checked earlier to make sure he doesn't need platelets.  We really are unsure of what caused this whole drop in blood counts, but his doctor is suspicious it may have been that small increase in his cytoxan (chemo).

Prayer request:
~Blood counts to recover
~MRI December 3rd