Nolan continued to have seizures over the weekend and he had to be moved to the PICU so they could get everything under control in a safe and fast way. Today he's finally been awake and talking more! Which we love!!
Unfortunately he has not been able to come off the bi pap without desating. The doctor ordered an X-ray and Nolan's lungs look great. So this problem is either seizure related or because of the decadron wean. They are going to try to take the bi pap off in the morning and if he does the same thing they will have to increase the steroids. Decadron is such a necessary evil but if it gets him out of the ICU we will take it. I have a feeling we will be discussing the next steps with Nolan's treatments soon. They don't want to do an MRI (because of the sedation problems) and we have determined the topotecan (chemo) is causing his electrolytes to drop... which is causing the seizures. We can't do this to him every month. So please be in prayer that we can get him off the bi pap in the morning and that we will make the right decisions for Nolan....
Thank you for all the support and prayers!
Brittany
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