Nolan has been very sleepy the past few days and I related to the fact he has just been laying around a lot lately.  so when yesterday was beautiful and sunny I encouraged him to get outside and walk to the end of the driveway and back with his walker.  All the kids were outside and Nolan was really enjoying being outside till all of a sudden his legs gave away and he fell backwards hitting his head on the pavement. I quickly rushed him to the ER where they did a CT scan of his head and realized he had a brain bleed. On top of that apparently his shunt had started malfunctioning sometime in the past week or two.  Our biggest concern was the low platelets could cause things to be even more serious but after test were run we realized Nolan's platelets went from 52,000 on Tuesday to 163,000. Talk about a big recovery!! The doctors thought it was a mistake so they ran it again but it was real :-)  He did have surgery last night and the neurosurgeon was able to remove a pretty large blood clot, he replaced the valve on Nolan's shunt and put in an external drain to remove the excess blood off of his brain.  The whole surgery went really good! The anesthesiologist prepared me for him to come out on a breathing tube because of his recent case of pneumonia but Nolan came out breathing on his own and talking.  He's doing super!! His CT scan this morning was much better! So hopefully the drain will come out in the next day or two. He will stay in picu at least one more night as a precaution and then he should be able to move to a regular room. 

Thank you for all the continued prayers!!

Brittany