We had a good visit today despite the news. Dr. Aguilera had a neurologist come in and do a full evaluation of Nolan while we were in clinic. It does appear that the tumor is pressing on a nerve or something... It's causing a lot of stiffness in his legs and ankles. This explains why he's doing some toe walking and falling all the time. We are hoping along with new chemo and some leg/ankle braces it will help him still be able to get around. I believe all the tumors In the brain are showing progression but dr. Aguilera is not concerned with them yet...the most concerning one is in his spine. If we are not able to shrink this one it will affect his legs, arms and breathing. Extremely hard to think about this....
Our decision is to go with a chemo that is a little heavier than he's been getting to hopefully jump start the regimen then switch to oral. He is getting one new chemo that he has never tried (topotecan) and one he's had twice (cytoxan). He will more than likely have to be inpatient to receive these and need blood transfusions....
Even though things seem discouraging We are all in good spirits! I know God has a plan for his life and we CHOOSE to enjoy every moment with him. Each day is a gift!
Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for The Lord your God will be with you wherever you go. Joshua 1:9
Thank you for all the prayers!
Brittany
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