Wednesday, June 26, 2013

This hospital stay has been a hard one for Nolan but we have had so many amazing people come to visit and cheer Nolan up!!  We got the call from Nolan's doctor yesterday that he couldn't attend camp :-( Nolan cried himself to sleep last night and it was horribly heartbreaking for me to watch...
To make matters worse he can not attend camp sunshine in the hospital. He is in a regular room on precaution/isolation so he isn't allowed to leave the room to attend.  We have had many camp sunshine visitors coming to bring Nolan activities plus some camp sunshine gear to make him feel like he is at camp.  

Today camp sunshine brought a special visitor! SPONGEBOB! Spongebob wasn't allowed in the room and Nolan couldn't leave the room but they talked and waved to each other from afar.  It was so sweet to see his smile again! 


Nolan is doing great! He's off oxygen and he's tolerating his g-tube feeds. He got his first infusion of IV IG yesterday without any problems and today he will get caught up on his chemo. If everything goes well we should go home tomorrow!! :-)

Brittany 

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