Clinic update

Nolan had clinic yesterday and we had some really difficult decisions to make. The doctors have been keeping a close eye on his kidneys lately and now the protein in his urine is extremely high. He is also having problems with his hands, feet and face swelling and some of his labs don't look right.  Basically the cause of these problems is from being on avastin for three years.  It just breaks my heart to know the medicine that he has to get to save his life is hurting him at the same time....

So we are stopping the avastin! Monday he has to do another 24 hour protein test to make sure he is improving.  He will also have more labs drawn and an ultrasound of his kidneys. We are hoping that once the avastin is stopped that everything will start improving but we just don't know right now. The good news is his blood counts still look great! His hemoglobin is 12, platelets 380,000 & ANC is in the 4,000 range. 

As far as the itching goes....we are trying new meds and it's to early to tell

He's still stumbling a lot and having a hard time getting around.  We think it's due to the swelling in his feet and his electrolytes being messed up because of the kidney issues. Hopefully it will improve if not the doctor will move his MRI up. 

Please keep praying! 

Brittany 

It was so hard to watch Nolan struggling at karate tonight....

Not sure what's going on but he's having a hard time with balance and walking. He has been falling ALOT!  He never complains...he never seems worried...he just gets up and keeps going.

I took him to the doctor a couple of days ago and he does have a little fluid in his right ear and considering he just had an MRI they really don't think it's cancer related.  It just doesn't make sense :-(

He goes to see the ENT Tuesday and he goes back to clinic Wednesday for chemo and IVIG.  I really hope this gets better but if not we are going to have to get to the bottom of this!! Right now he's on 3 different antihistamines with no improvement :-(

Also the horrible, itchy rash is still on his neck. We did get a new prescription from the dermatologist  Monday that we are trying but so far it's still the same....

Thank you for keeping Nolan in your prayers!!

Brittany

So do not fear, for I am with you; do not be dismayed, for I am your God.  I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10