What an Awesome clinic day! Nolan's blood counts were excellent, he was happy and best of all we got to see so many of our wonderful friends :-)

Now that Nolan has recovered from all the problems he was having and his blood counts have remained stable Dr. Aguilera decided to go up a little on his chemo.  He Started Cycle #4 today of Cytoxan and will alternate between 25mg and 50mg.  He will also start 100mg of thalidomide tonight.  From the time he started this protocol we were supposed to be increasing the thalidomide weekly but Nolan's body wasn't able to handle it.  Now we are at a really good point and Nolan's doing the best he's done in a long time.  Just continue to pray for his strength....Dr. Aguilera said, it could take between 3-4 weeks to see how his body is handling the changes.

After the clinic we went to Georgia Tech to visit his tennis buddies.  It's always sad to see the old friends graduate and go but it is exciting to meet all the new faces.  Nolan just loves hanging out with these guys and we appreciate the time they take to spend with Nolan.  I can't say enough good things about this team! Coach Kenny Thorne does such a good job!

 Exciting news, Nolan was able to spend some time with the Braves Sunday.  You can see a few of the pictures on his flickr site www.flickr.com/photos/pray4nolan.  There was also a short segment done on the Rally Foundation and you can see that tomorrow on NBC sports at 9pm.  The show is called "Caught Looking" a behind the scenes look of MLB.

Thank you to everyone that has helped us raise money For our Cure Childhood Cancer fundraiser!! We are up to $540.  You can still make donations and if you are keeping up with Cure's blog Nolan will be featured on September 22nd. Here's the link...
http://www.firstgiving.com/fundraiser/nolanblake/2012-cures-kids-conquer-cancer-one-day-at-a-time

You can also still get your Rally for Nolan t-shirt ;-)
http://rallyfoundation.org/index.php/kids/rally_kid_nolan_tshirt_fundraiser

MRI results

Dr. Aguilera called me this evening with the results of Nolan's MRI.  Everything appears stable...phew! For those who don't know much about MRI's and brain tumors, Stable basically means no shrinkage and no growth.  We were really hoping to see some shrinkage of the tumors but she assured me everything looks good. We will keep on with the metronomic chemotherapy and do another MRI in 2 months.   Nolan has an appointment Friday for his chemo and she will go over more details with me about the MRI. If anything new comes up I will be sure to post it.

After the MRI we picked up Nolan's cool new "slime green" hearing aid molds.  His favorite color :-)

A quick prayer request, Dr. Aguilera asked if I would allow Nolan's tumor tissue to be sent to St. Jude's and tested to see if he has the sonic hedgehog pathway.  If Nolan has the pathway, it would give us more hope for a cure.  Please, please, please be in prayer that he has this pathway.  We don't have a lot of options to fall back on.

If you could please help us with our Cure Childhood cancer fund raiser. If everyone could just donate $5 it could make a big difference in a lot of little children's lives. Here's a few statistics...

http://www.firstgiving.com/fundraiser/nolanblake/2012-cures-kids-conquer-cancer-one-day-at-a-time

and if you would like a Rally for Nolan t-shirt, here's the link.  All proceeds from the t-shirt sales goes specifically to research medulloblastoma.
http://rallyfoundation.org/index.php/kids/rally_kid_nolan_tshirt_fundraiser

Thank you for supporting Nolan,

A day at the race track/MRI

Nolan had an AWESOME weekend at the race track!!!  Carl Edwards came out of his trailer wearing a signed subway hat, took it off his head and placed it on Nolan.  They chatted a while, I think Nolan was at a loss for words but quickly warmed up ;-)  Carl asked Nolan if he wanted to check out his car in the garage.  Nolan's eye's just lit up :-) Carl walked him down to the garages and started pointing out how everything works and asked Nolan if he would like to sit in his car?  Nolan was so excited!!! Carl picked him up and placed him in the race car! It was just a dream for Nolan! His pit crew were jacking up the car, changing the tires and doing all that cool guy stuff!  Thank you to our sweet dear friend that made this possible.  Nolan is still in awe of what he got to do...you can check out the picture on the flickr link: http://www.flickr.com/photos/pray4nolan

We would appreciate as many prayers as possible.  Nolan has a MRI very early in the morning.  If I get any results I will post them as soon as I can.  There is a slight possibility we will have to wait until Friday's appointment with Dr. Aguilera. 

Don't forget, September is Childhood Cancer Awareness Month and we are raising money for Cure Childhood Cancer and the Rally Foundation.

http://www.firstgiving.com/fundraiser/nolanblake/2012-cures-kids-conquer-cancer-one-day-at-a-time

This is our t-shirt fundraiser link.  All money raised from the t-shirt sales goes specifically for Medulloblastoma research
http://rallyfoundation.org/index.php/kids/rally_kid_nolan_tshirt_fundraiser