the plan

Nolan seemed a little better yesterday afternoon. I'm sure the good pain meds helped...
This morning they woke him up at about 6:30 to take him to CT and his pain was pretty bad :-(
So here's the results...
The scan is somewhat stable but still on the fence. I'm not sure how many people understand whats going on so I will try to explain a little. Because Nolan has had brain and spinal tumors along with brain surgeries he has a lot of scarring. This has led to Nolan's body not being able to drain his spinal fluid like a normal person. In 2009 he had his first shunt put in it's pretty visible when he doesn't have much hair. The biggest part is implanted in his head and a drain goes down his neck and to his stomach. If this stops functioning for any reason it can cause an increase in pressure in the brain and a lot of headaches. We are still unsure if this is the issue so they have decided to do a special test either today or tomorrow. They will inject a dye in the valve that's in his head and let it drain down. While its draining they will take a bunch of images. Hopefully this will rule out any shunt problems. Nolan will not be sedated for this test. He's a pretty brave boy and is not usually bothered by these kind of test but I will comfort him with a chance to pick out a cool courage bead once he's done.
The doctor talked like if this is not shunt related this could possibly be something new Nolan is going to have to deal with...
I know migraines are fairly common and there are ways of controlling them so I pray that we are able to find what works for Nolan. I will try to update as soon as I find out something.

Thank you for praying for Nolan!
Brittany