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I was shocked and surprised when I was told yesterday that Nolan would be going home. He was still very lethargic and still in pain. I went and talked to Dr. Aguilera about Nolan's steroid schedule before they released him to make sure that this medicine would kick in quickly and give him the relief he needed. I was very uneasy about him going home and the nurse had to give him loratab to get him from the bed to his wheelchair :-( By the time we got home he was in horrible pain but it was to early to give him anymore pain meds. I helped him get a nice warm bath and got him to bed hoping that he would wake up tomorrow feeling all better. Didn't happen....
He woke with a horrible headache and started vomiting. After talking to Aflac we have decided to go up on some of his pain meds and if anything gets worse he will have to go to the clinic or the ER. Apparently it can take 24 to 48 hours for the steroids to kick in :-( I really don't mean to sound down on the steroids, I know a lot of people have commented about being on them. They are just causing a lot of health problems for him and it interferes with the experimental and hopeful chemo he is on. Please be in prayer that this pain will go away. It's so horrible to watch your child be in pain and know there isn't anything you can do to fix it. I'm ready to see his smile again

Brittany