I was able to talk to the neurosurgeon and the plan we came up with today was to add caffeine to Nolan's diet to help with pain control and put a binder around his stomach to help control the CSF flow. Binder placed and IV caffeine was given but not a big change. I would say the caffeine gave him the want to get up and move around but when he got up all he wanted to do was lay back down..ugh! poor guy! I really don't know if the binder is helping or not?
Dr. Aguilera came in to talk to me this afternoon and she told me we are basically just masking the problem. Everything keeps coming back to the shunt. She is e-mailing Dr. Reisner (Nolan's neurosurgeon) and hoping he can come up with a plan. It's back and forth, back and forth. Nolan is just a mystery right now and I'm still praying for some answers!
I hope everyone had a wonderful Easter!
Brittany
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