I can't even describe the past two weeks.  There have been a lot of "ups" and "downs"

I guess to start it off Charlie broke both elbows and both arms are in long arm cast, He ended up having to have surgery on one elbow followed by flu the next day :-(
Poor guy has had a rough almost 2 weeks.  Please be in prayer that his elbows will heal, he won't have any problems and that he will have a speedy recovery from not only the elbows but the flu.
Everyone had the flu shot at our house BUT that doesn't always mean you are fully protected.  Sometimes I wonder if it's worth the risk of getting the shot?  Thankfully the ER gave Charlie a prescription for tamiflu and one for Nolan to help Prevent Nolan from catching it.  It could be awful if Nolan got it....

For the good news :-)
Since coming off the dapsone Nolan has been able to sleep with NO oxygen.  This is just a miracle!!  I had to go back through the caringbridge and find out when Nolan started taking this medication and it was September 2011!!! He's been taking something that he is allergic to for that long!  Within 6 weeks of starting the dapsone in 2011 Nolan started having oxygen problems.  He's been through many CT scans with contrast, lung function test, vest therapy and so much more and no one has been able to tell us whats wrong with him until now.  It just makes me sick to my stomach.  Since this effects your hemoglobin could this be part of his problems he's been having with his blood for so long?  A lot of his numbers on his CBC are starting to level out and look better.  I am so thankful for finding this problem but so heartbroken Nolan had to go through so much before we found out what was wrong...

All Nolan's blood counts look AWESOME! His urine test came back normal :-) and he was able to resume his Avastin (chemo) yesterday.  MRI is in two weeks! Please pray we will see some tumor shrinkage...

Nolan with his 10th birthday cake!