It has been quite a rough and crazy week! Nolan went in the clinic Thursday for a routine visit and chemo infusion and it turned into so much more. In triage they realized his oxygen was really low and he was rushed to the back. It really scared me on how serious they were taking this. Nolan's had oxygen problems for so long....

They did numerous blood test and we found out he had methemoglobinemia. You can google it, to hard to explain! lol

All this was caused by the dapsone he's been on forever! The remedy for this was an infusion of methylene blue (it's really blue...lol) the results were pretty quick but it got worse before it got better. As soon as the infusion was complete his blood pressure spiked, he started vomiting and his oxygen dropped to 77. Everything seemed to level it self out within an hour and he got an infusion of rocephin and a bolus of fluids. Apparently he has an infection going on somewhere in his body, just not sure where. What's amazing is, all this was done outpatient! They know Nolan's rule, no hospital unless absolutely needed! lol

He did have to go back today and so far everything looks good. He still has not received his avastin infusion. The protein in his urine is still too high. He will do a 24 hour urine test next week to get a better idea of what's going on. If it looks better he will be able to get his avastin, if not he will continue the break and possibly have more time In between infusions in the future. Please be in prayer for good results. 

Thank you to everyone who wished Nolan a happy birthday! It really made his day  :-)