final results of the MRI

We have good things and bad things happening again.  For about 2 weeks Nolan has been falling a lot and having a lot of problems with his arms and legs shaking without his control.   Everything pointed to problems with tumors.  I don't know why I haven't mentioned it until now.  I guess a part of me was worried and I didn't want everyone else to be worried.  Today Nolan went in for labs and for Dr. Aguilera to go over the final results with me.  I do believe everyone is really surprised on how well Nolan responded to radiation.  Everything looks so much better and we expect it to continue to improve.  So why these weird problems?  We think his spinal cord is swelling from the radiation :-(
He will start back on decadron (steroid to reduce swelling) tomorrow...
Yeah, we are disappointed but it's so hard to see him this way and we don't want this to be permanent.
This means a flip flop in his medicine schedule because everolimus and decadron don't mix well.  We are really hoping that the decadron won't mess with his everolimus levels.  I don't know if I have ever mentioned before but they test his blood about once a month to keep an eye on the level of everolimus Nolan has in his body.  There is supposed to be a gradual increase and a good majority of the time patients have a hard time reaching good enough levels to be effective. The good news about Nolan's everolimus is his levels shot right up without any problems :-)  We are excited about this!!
Oh and his blood counts look wonderful!!!!!!!!!!!!!!!!!!!!!!!

Prayer request are for these symptoms to go away and for Nolan to maintain a good everolimus level.

Thank you all!