The main cause of Nolan's hearing loss is from a chemo called "cisplatin" Bad stuff! He has sensorineural hearing loss. Basically the chemo damaged the hair cells in his cochlea and it is permanent. He can't hear any high pitch sounds. A lot of people say," isn't that good?" Imagine for a minute if someone took all the f's, k's, t's and s's out of your sentences? It would all sound like, blah, blah, blah...lol Those are the sounds Nolan can't make out. He wears hearing aids and most children over time with this type of hearing loss will continue to loose hearing :( We've got to find a better cure! Everything that has saved Nolan's life has caused damage in other parts of his body.
Nolan will continue having his hearing tested every 6 months and right now he's having fun picking out all the cool colors :)
Another side effect of chemo was the neuropathy I had mentioned in an earlier post. To this day Nolan still has problems with his toes. He lost feeling in his feet for a long time and still is unable to pick his toes up when he walks. He wears braces to help give him a normal walking motion. The braces pictures above are his older ones. He now wears kiddie gaits. They look like he's wearing shin guards for soccer, but they go under his feet and give him the extra boost he needs.
Another side effect of chemo is low blood counts. Nolan has had numerous, numerous blood and platelet transfusions! Thank you, Thank you to all who donate. Nolan's blood type is B positive. So that's our Motto: to "B" positive :) I love it!
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