slightly better day

All though today was not as productive, it was better. Nolan had absolutely no pain all morning!! Woohoo! Then we decided to take him off the pain pump and he started having pain again :-(
The good thing is he's not on a continuous drip of narcotics with lots of boluses anymore, he only gets a dose when he feels pain :-)

He had a head CT early this morning and everything appeared stable and I'm not getting a clear answer on this but no change in the sinus area. I guess I'm going to have to convince oncology to get an ENT involved. This has to clear up!

Nolan made several attempts to get up but every time he did the pain came back. I see that he "wants" to but he can't. It's all so frustrating! For a little while Nolan will look good and feel good then he goes right back to looking bad and feeling bad :-(

Please pray we will continue to see progress and be able to come up with a good plan for tomorrow!

Brittany