This feels never ending...
Nolan is on several different pain medicines but is still dealing with horrible head pain :-(
It is so heartbreaking to watch him in so much pain and feel I can't help him in anyway. I have no idea what to do and the doctors don't know what to do. As a mom you put band aids on boo boo's or take your child to the doctor when they are sick but you don't expect this....
We were in Atlanta most of the day discussing meds and little bit of everything. We basically have been playing a guessing game and we still are. All the doctors agree that Nolan is still in some sort of medicine type crisis. We don't know whats not agreeing with what but we are going to little by little wean him off the things we don't think he needs anymore. Also the pain team recommended acupuncture so he started that today. It would be wonderful if he can get pain relief without taking another medicine that will only cause more side effects, I'm all for it!
We need lots of prayers for Nolan! Prayers for pain relief and for his upcoming MRI and spinal tap on May 17th.
Thank you so much for all the continued prayers and support!
Brittany
Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matthew 6:34
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