Where do I even begin! We were in the clinic from 7:45am till 4:00pm. I thought today was going to be simple! I was so wrong! lol
To start they couldn't get a vein to draw blood again.  He's bruised on both arms just from being poked over and over again without any breaks.  We had to go back to finger sticks for a little while.  I feel so bad for him :-(  Then when the blood counts came back everything was really low!! Nolan's hemoglobin was 5.9
ANC is 400 and platelets are 94,000.  No chemo today and he got two units of blood.  I'm hoping he will feel better now.  His hemoglobin has never been that low before. Dr. Aguilera decided to hold his infusion of Avastin and all his oral chemo until his body recovers.  He will have his blood checked again on Tuesday to see if his counts have come up high enough to resume oral chemo and get his infusion.  One thing I've noticed lately is Nolan's hands have been really shaky and his balance has been awful.  After I mentioned it to Dr. Aguilera she did a full neurological exam and said, neurologically he looks good.  It's the thalidomide!  Apparently the thalidomide causes neuropathy and he's developing it in his hands and feet. So she took him off of that for now.  We will see how he does without it and if he improves we know that thalidomide is our problem.  If not we will move the MRI up.

We have a prayer request, Nolan's blood work has been off for the past couple of months and his MCV has been rapidly increasing.  The doctor really can't explain...
She has been running a lot of test but everything has come back negative so far.  We just need to find out whats causing this and how to treat it.  We thought he had a vitamin B12 deficiency but so far all the blood work for that has come back normal.

Nolan had a blast at the clinic though! More candy than you could possibly imagine!! He fell asleep with a whole stash under his blanket's in this picture...lol

Nolan getting his blood drawn by a fairy...lol

The kids with their friend Millan
October 31st 2012

I am so excited to say, Nolan got baptized this past weekend!!! So thankful for this wonderful moment!
  I wish the video wasn't so blurry...