beads of courage and EEG

Nolan proudly wearing his Beads of Courage

  Nolan was excited about starting his 18th Beads of Courage necklace this week!! We feel so blessed to have Beads Of courage to help us through this time.  It's been so therapeutic for Nolan.  Wednesday in the clinic they couldn't find a vein and he had to get poked over and over.  Strangely Nolan remained calm, counting every poke.  Knowing how many beads he was going to get distracted him from what he was having to go through at the moment.  When finished Nolan had three black beads for each time poked and a courage bead for being brave.  He proudly strung them and slipped them around his neck for the picture.

Monday Nolan met with his new Neurologist and we went over everything that has been going on.  Dr. Philbrooks was a little worried about Nolan's bouts of confusion, having a hard time getting words out and sleepiness.( Finally a neurologist that listens!!) He had him in to have an EEG that day.  He called yesterday to give me the results.  They were abnormal but showed no seizure spells.  He wants him to come in to get admitted for a longer EEG. The next one could be 24-72 hours.  Won't know until they have everything set up.  Just be praying for answers.  We really want to get to the bottom of things.  I will let everyone know when we have a date, until then the doctor has upped his Keppra dose.

As far as oncology goes, he has an appointment on October 31st (yes Halloween..lol)
to get labs done and get his infusion of chemo.  If all his blood counts come back good he will start his cycle of cytoxan.

Thank you for keeping up with Nolan :-)