Short update...
The breathing tube is out! Thank goodness!!
We were hoping he would go straight to an oxygen cannula but he was struggling too much. He's on a bi pap machine but is already making progress with that :-) he's such a strong boy!!
He finished round one of chemo last night and his blood counts are already starting to drop. He will probably need platelets and blood tomorrow.
EEG results showed no more seizures :-) They have already increased his seizure meds to hopefully prevent this from happening again. The MRI results showed a little more progression in the brain but the spine is still stable. We weren't sure that we would see a difference yet but we were really hoping for stable scans...
We will do at least one more round of this chemo and if no changes we will stop and trying something different. Nolan has an amazing, never give up attitude and I am right behind supporting him.
Thank you for all the prayers!!
Brittany
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