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We decided it was best for Nolan to come home. Even though he still seems very sleepy he had been headache free for 24 hours and they really weren't doing anything that I couldn't do for him at home. We get home and Nolan tells me he has a headache again :-(
I'm still seeing small improvements in him and I hope it continues. As of right now we still think the everolimus drug is causing all Nolan's problems. I'm going to continue to keep a record of everything and he should go back to clinic next week so we can discuss what to do next.

Thank you for all the continued prayers!
Brittany