See how good Nolan looks in this picture? He has been doing so good and he's so happy, I couldn't imagine getting anything but good news on his MRI. I was wrong...
His tumors are growing. The one in the spine is the one we are most worried about. There isn't much more room and if it continues to grow Nolan will loose the use of his arms and his ability to breathe on his own. So this is the plan...Tomorrow we meet with Dr. Aguilera (Nolan's neuro oncologist) to go over plans, then we meet with Dr. Natia (Nolan's radiation oncologist). If all goes as planned he will start radiation Monday. He will only get radiation to the tumor sites and he will go every day for several weeks. When that is done he will do an experimental chemo protocol that has not been done on any medulloblastoma patients. This will require weekly infusions in the clinic and at home chemo.
We are completely devastated and heartbroken. I just want to freeze time....
This verse keeps going over and over in my head. It has really helped me cope during this time.
I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world. John 16:33
Please continue to keep Nolan in your prayers.
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